Fundraising Goal
50
Shirts Sold
46
Updated 9/4/2024
Money Raised
$1335
What is Rett Syndrome?
A Devastating Diagnosis
Rett syndrome is a rare neurological disorder primarily affecting females as well as many males, causing developmental regression after infancy. Symptoms include loss of speech, hand movements, and coordination, as well as difficulties with breathing and sleep. This progressive disorder can significantly impact an individual's ability to communicate, move, and learn, causing immense challenges for both the individual and their family.
Families need support now!
Individuals with Rett syndrome & their families often face significant financial hardship due to the high cost of specialized care, therapies, and adaptive equipment; many are single-parent households. Accessible equipment, such as wheelchairs, communication devices, and home modifications are essential but can be prohibitively expensive. Immediate financial support is crucial to help these families navigate the challenges posed by Rett syndrome and provide their loved ones with the best possible quality of life.
Buy a Shirt & Help a Rett Syndrome Family
Purchase a stylish t-shirt and make a direct impact on the lives of families affected by this debilitating disorder. 100% of the funds collected from every shirt sold will be donated to Frankie Says Fight Rett, a nonprofit dedicated to providing essential support to the families of Rett syndrome individuals.
Let's come together to create a brighter future for individuals with Rett syndrome.
Interested in giving directly to Frankie Says Fight Rett? Click the link below to donate through their PayPal.
About Frankie Says Fight Rett
Frankie Says Fight Rett was created to provide broadened awareness of Rett syndrome. The organization raises funds that are used to benefit individuals with Rett syndrome to supplement travel expenses for medical care, respite care for parents and caregivers, memorial funds, and supplement the cost of medical devices needed to assist in their day-to-day lives. Care comes first!
Frankie Says Fight Rett is a 501(c)3 tax exempt organization.
Tax ID 46-5684253